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Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
http://www.ambrygen.com |
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CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
http://www.cfprescriber.com |
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Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
http://www.cindys-friends.com |
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Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family.
http://www.cysticfibrosismedicine.com |
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Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
http://www.cysticfibrosiswa.org |
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Cystic-L
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
http://www.cystic-l.org |
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CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
http://www.cysticfibrosis.com |
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MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
http://www.mycysticfibrosis.com |
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Providence Cystic Fibrosis Center
Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
http://www.cfcenter.net |
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The Breathing Room
Guidance about the art of living with cystic fibrosis.
http://www.thebreathingroom.org |
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The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
http://www.spiritoflo.com |
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